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Charmaine
D. Royal, Ph.D.
Principal Investigator
Although
the GenEthics
unit is the
newest of the
NHGC core areas,
there is little
doubt that its
success will
serve as a barometer
for measuring
the overall
success of the
Center. Clearly,
the ultimate
determinant
of the NHGC's
ability to accomplish
its stated goal
Is the effectiveness
with which it
communicates
and applies
its scientific
findings and
implications
of those findings
to the communities
it serves, as
well as to the
broader national
and global societies.
With the ever-increasing
demand for more
deliberate attention
to the non-scientific
impacts of human
genome research,
particularly
for diverse,
underrepresented,
and traditionally
disadvantaged
groups, this
GenEthics unit
faces the tremendous
challenge of
unraveling both
emerging and
long-standing
ethical and
societal issues
related not
only to human
genome research,
but also to
human relations.
It has become
increasingly
Charmaine D.
Royal, Ph.D.
evident that
without adequate
and appropriate
integration
of the historical
context (i.e.
social, political,
cultural, and
economic effects),
effort (including
human genome
research) to
eliminate or
even reduce
the existing
health disparities
will be futile.
Accordingly,
major goals
of this unit
are to identify
and address,
in context,
the implications
of human genetics/genome
research for
African Americans,
other African
Diaspora populations,
and other people
of color, as
well as to engender
a greater appreciation
for the genotypic,
phenotypic,
and cultural
diversity of
our species.
The
GenEthics unit
is guided by
a Community
Advisory Board
and comprises
three major
components -
Research, Education/Outreach,
and Policy.
The interrelationship
between these
components is
demonstrated
in the overarching
nature of the
Research program
(it informs
both the Education
and Policy components)
and the dependent
characteristic
of the Policy
component (it
is informed
by the Research
and Education/Outreach
components).
The
Genethics Unit
includes the
following staff
members:
- Greer,Tiffney
- Roach,
Allana
-
Robinson-Hill,
Valerie
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