CHARMAINE  D.  M.  ROYAL, PH.D.

EDUCATION

1997                 Ph.D. - Human Genetics
                        Howard University, Washington, DC 

1992                 M.S. - Genetic Counseling
                        Howard University, Washington, DC 

1988                 B.S. - Microbiology
                        Howard University, Washington, DC     

EXPERIENCE           

1992-1995      Genetic Counselor, Center for Sickle Cell Disease, Howard University, Washington, DC

1995-1996     Graduate Student Assistant, Program in Clinical Ethics, College of Medicine, Howard University, Washington, DC 

1997-1999     Postdoctoral Fellow, Bioethics and Special Populations Research Program, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD  

Research Associate, Cancer Center and National Human Genome Center, Howard University, Washington, DC

1999-            Principal Investigator, GenEthics Unit, National Human Genome Center, Howard University, Washington, DC

2000-            Assistant Professor, Department of Pediatrics, Division of Medical Genetics, College of Medicine, Howard University, Washington, DC

2002-           Assistant Professor, Department of Genetics and Human Genetics, Graduate School, Howard University, Washington, DC

2004-           Director, GenEthics Unit, National Human Genome Center, Howard University, Washington, DC 

PROFESSIONAL ORGANIZATIONS           

American Society of Human Genetics

National Society of Genetic Counselors

Sigma Xi Scientific Honor Society

American Society for Bioethics and Humanities                            

National Medical Association

 PROFESSIONAL COMMITTEES        

1997-1998      Diverse Populations Working Group, National Human Genome Research Institute, NIH     

1997-1998      GenEthics Consortium Steering Committee               

1998-1999      Bioethics Education Materials and Resources Subcommittee, NIH 

1998-            Steering Committee, African American Hereditary Prostate Cancer Study Network

1998-2000      Institutional Review Board, National Human Genome Research Institute, NIH

2000-            Diversity and Cultural Competence Working Group, National Coalition for Health                 Professional Education in Genetics

2001-2002     Community Issues Subcommittee, Pharmacogenomics Network Steering Committee, National Institute of General Medical Sciences, NIH

2001-2002     Advisory Committee, Genome Minority Outreach Video for Inclusive Education, National Human Genome Research Institute, NIH

2001-            ELSI Working Group, International Haplotype Map Project, National Human Genome Research  Institute, NIH     

2001-            Cultural Competency Advisory Committee, National Medical Association

2001-2002      Board of Directors, Genetic Alliance

2002-            Bioethics Advisory Committee, March of Dimes Birth Defects Foundation

2003-             African American Accrual Advisory Board, GlaxoSmithKline 

PUBLICATIONS

Royal, C., Headings, V., Molnar, E., and Ampy, F. (1995). Resilience in Siblings of Children with Sickle Cell Disease. Journal of Genetic Counseling, 4(3), 199-217.

Headings, V., Royal, C., Uzoma, C., Winter, W., Castro, O. and Calvert, A. (1995). Ethics and Strategies for Optimizing Inclusion in Hemoglobinopathy Risk Screening.  Proceeding of the 11^th National Neonatal Screening, Corpus Christi, Texas.

Love, Cynthia B., Thomson, Elizabeth J., Royal, Charmaine D., compilers. Ethics of human subject experimentation [bibliography on the Internet]. Bethesda (MD): National Library of Medicine; 1999 Feb. (Current bibliographies in medicine; no. 99-1). 4621 citations from January 1989 through November 1998. Available from: http://www.nlm.nih.gov/pubs/resources.html

 Royal, C., Headings, V., Harrell, J., Ampy, F., and Hall, G. (2000). Coping Strategies in Families of Children with Sickle Cell Disease. Ethnicity and Disease, 10(2), 237-247.

 Royal, C., Baffoe-Bonnie, A., Kittles, R., Powell, I., Bennett, J., Hoke, G.,  Pettaway, C., Weinrich, S., Vijayakumar, S., Ahaghotu, C., Mason, T., Johnson, E., Obeikwe, M., Simpson, C., Mejia, R., Boykin, W., Roberson, P.,  Frost, J., Faison-Smith, L., Meegan, C., Foster, N., Furbert-Harris, P., Carpten, J., Bailey-Wilson, J., Trent, J., Berg, K., Dunston, G., and Collins, F. (2000). Recruitment Experience in the First Phase of the African American Hereditary Prostate Cancer (AAHPC) Study. Annals of Epidemiology, 10(8), 68-77.

 Powell, I., Carpten, J., Dunston, Kittles, R., Bennett, Hoke, G., Pettaway, C., Weinrich, S., Vijayakumar, S., Ahaghotu, C., Boykin, W., Mason, T., Royal, C., Baffoe-Bonnie, A., Bailey-Wilson, J., Trent, J., Berg, K., and Collins, F. (2001). African American Hereditary Prostate Cancer Study: A Model for Genetic Research. Journal of the National Medical Association, 93(4), 120-123.

 Ellison, G., Coker, A., Hebert, J., Sanderson, M., Royal, C., and Weinrich, S. (2001). Psychosocial Stress and Prostate Cancer: A Theoretical Model. Ethnicity and Disease, 11, 484-495.

 Weinrich, S., Royal, C., Pettaway, C, Dunston, G, Faison-Smith, L., Hudson, J., Roberson-Smith, P., Frost, J., Jenkins, J., Brooks, K., Powell, I. (2002). Interest in Prostate Cancer Susceptibility Testing Among African American Men. Cancer Nursing, 25(1), 28-34.

 Weinrich, S., Faison-Smith, L., Hudson, J., Royal, C., Powell, I. (2002). Stability of Self-Reported Family History of Prostate Cancer Among African American Men. Journal of Nursing Measurement, 10(1), 39-45.
 

 Kittles, R., and Royal, C. (2003). The Genetics of African Americans: Implications for Disease Gene Mapping and Identity. In: A. Goodman, D. Heath, and M. S. Lindee (Eds.), Genetic Nature/Culture: Anthropology and Science beyond the Two-Culture Divide. University of California Press, Berkeley, pp. 219-233.

 Dula, A., Royal, C., and Secundy, M. (2003). The Ethical and Social Implications of Exploring African

American Genealogies. Developing World Bioethics, 3(2). 133-141.

 International HapMap Consortium (2003). The International HapMap Project. Nature 426:789-796

 International HapMap Consortium (2004). Integrating Ethics and Science in the International HapMap Project. Nature Reviews Genetics, 5, 467-475.

 Ahaghotu, C., Baffoe-Bonnie, A., Kittles, R., Pettaway, C.,  Powell, I., Royal, C., Wang, H., Vijayakumar, S., Bennett, J., Hoke, G., Mason, T., Bailey-Wilson, J., Boykin, W., Berg, K., Carpten, J., Weinrich, S., Trent, J., Dunston, G., and Collins, F. (2004). Clinical characteristics of African American men with hereditary prostate cancer: the AAHPC study.  Prostate Cancer and Prostatic Diseases, 7, 165-169.

 Dunston, G. and Royal, C. (2004).  The Human Genome: Implications for the Health of African Americans. In: I. Livingston (Ed.), Praeger Handbook of Black American Health: Policies and Issues behind Disparities in Health. Second Edition, Volume II. Greenwood Publishing Group, Westport, CT, pp. 757-775.

 SELECTED PRESENTATIONS

“Human Genome Project: Ethical and Social Issues.” National Institutes of Health Mini-Med School, Washington DC, October 1997.

 “Implications of Cystic Fibrosis Testing in African Americans.” Genetic Testing for Cystic Fibrosis Consensus Development Conference Follow-up Workshop, Bethesda MD, October 1997.

 “Inclusion of Ethnic/Racial Minorities in Bio-Medical Research: Benefits, Risks and Challenges.” National Dialogue on Genetics, College Park MD, March 1998.          

 “Ethical, Legal, and Social Implications of the Human Genome Project.” Cleft-Palate/Craniofacial Association Meeting, Baltimore MD, April 1998.

 “Ethical Issues in Genetic Studies.” Howard University Cancer Center Prostate Cancer Symposium, Bethesda MD, September 1998.

 “Coping Strategies in Families of Children with Sickle Cell Disease.” 48^th Annual Meeting of the American Society of Human Genetics, Denver CO, October 1998.

 “Involvement of African Americans in Human Genetics Research.” Workshop on Anthropology, Genetic Diversity, and Ethics, Milwaukee WI, February 1999.

 “SES, Health Disparities, and Genetic Susceptibility.”  Concept Forum on SES and Health Disparities. National Institutes of Health, Bethesda MD, March 1999.

 “Group Rights in Genetic Research: What Can That Mean and How Do We Respond?”  2^nd Annual Meeting of the American Society for Bioethics and Humanities, Philadelphia PA, October 1999.

 “African American Perspectives on Issues of Genetics Research and Testing.”  Second National Conference on Genetics and Disease Prevention, Baltimore MD, December 1999.

 “Ethical Considerations in the Era of the ‘New Genetics’.”  Planned Parenthood Visioning Leadership Conference: Voyage to 2025, Marco Island FL, January 2000. 

 “The Human Genome Project: Legal Implications for Diverse Populations.”  National Association of Women Judges Conference: Bioethical Issues and Judging, Washington DC, March 2000.

 “Ethics.” National Human Genome Research Institute Genomics Short Course, National Institutes of Health, Bethesda MD, August 2000.

 “Societal Perspectives on Advances in Genetic Research and Technologies.” Third National Conference on Genetics and Public Health, Ann Arbor MI, September 2000.

 “Risks and Benefits of Participating in Genetics Research.” First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research, National Institutes of Health, Bethesda MD, September 2000.

 “Participating in Genetic Research.”  Second Annual National Human Genome Research Institute Consumer Day, National Institutes of Health, Bethesda MD, November 2000.

 “Ethics and Special Populations Research.”  FAES Medical Genetics Course, National Human Genome Research Institute, National Institutes of Health, Bethesda MD, March 2001.

 “Human Genome Project and Its Implications for African Americans.” 26^th Annual NAFEO Conference, Washington DC, March 2001.

 “Health Disparities: How Should the Black World Respond?” Racism and the Black World Response Symposium, Nova Scotia, Canada, August 2001. 

 “Human Genome Research and Cultural Competence.” National Medical Association Planning Meeting, Honolulu HI, October 2001.

  “People of Color as Partners and Leaders in Human Genome Research.” 4^th Annual Meeting of the American Society for Bioethics and Humanities, Nashville TN, October 2001.

 “Health Disparities and Human Genome Research.”  Zeta Phi Beta Sorority National Educational Foundation - Human Genome Project Conference, Washington DC, November 2001.

 “Genetics Research and Communities of Color: The Good, the Bad and the Ugly.” West Harlem Environmental Action’s conference on Human Genetics, Environment, and Communities of Color: Ethical and Social Implications. New York NY, February 2002.

 “Ethical, Legal and Social Issues of the Human Genome Project.” Zeta Phi Beta Sorority, Inc., Beta Theta Zeta Chapter’s Human Genome Conference. Norfolk VA, April 2002.

 “Ethics and African American Genealogy.”  Powderhorn/Phillips Cultural Wellness Center- African Genealogy & Genetics: Looking Back to Move Forward. Minneapolis MN, June 2002.

 “Human Genome Research & Cultural Competence.” National Medical Association Annual Convention and Scientific Assembly. Honolulu HI, August 2002.

   “Perspectives on Genetic Variation Research.” American Society for Bioethics and Humanities 5^th Annual Meeting. Baltimore MD, October 2002.

 “Race/Ethnicity and Genetics in the Newborn Screening Context.” Ethical Issues in Newborn Screening. Hastings Center Meeting. New York NY, April 2003.

 “Genes and Race: Implications for Future of Clinical Research/Practice.” Johns Hopkins University Greenwall Fellowship Program. Washington DC, May 2003.

 “Ethical, Legal, and Social Implications of Human Genomic/Genetics Research.” Joint Center for Political and Economic Studies, Washington DC, November 2003.

 “HapMap in Nigeria: The Community Engagement Process.” The International HapMap Consortium Meeting. Cold Spring Harbor NY, May 2004.

 “Ethical, Legal, and Social Implications of Genomic Research and Medicine.” 102^nd Annual Convention and Scientific Assembly of the National Medical Association, San Diego CA, August 2004. 

“Informed Consent for Research in Minority Communities.” AAAS Minority Science Writers Workshop. Washington DC, August 2004.