Useful Resources

Family History Information & Tools

• Surgeon General’s Family Health History Initiative (contains free information and tools to help)
• My Family Health Portrait Web Version (a free online tool to track, view and share your Family Health History)
• My Family Health Portrait Printable PDF
• March of Dimes (free preconception/prenatal health history questionnaire)
• Genetic Alliance Family Health History Questionnaire (a free questionnaire to help you collect your Family Health History information)
• National Foster Care & Adoption Directory (may help you fill in missing Family Health History information if you were adopted)
• Family History Chapter from Genomics and Public Health (a helpful place to find out more about Family Health History)
• Centers for Disease Control and Prevention Family History Resources and Tools (a good place to find many genetics and Family Health History tools)

Race, Genetics, Genetic Counseling, and Specific Diseases

• American Anthropological Association: “Race: Are We So Different?” (an interesting project exploring the similarities between races)
• Centers for Disease Control and Prevention (information on specific diseases)
• Genetic Alliance Guide to Understanding Genetics (a wide range of information explaining genetics, including handy fact sheets)
• NIH Genetics Home Reference (definitions and illustrations)
• NIH Genetic and Rare Disease Information Center (GARD) (answers your questions about genetic and rare diseases)
• National Society of Genetic Counselors (to find a genetic counselor near you)
• Office of Minority Health (information on specific health topics)

Local Resources:

Birth and Death Certificate Information (A fee is charged by the agency per certificate)

Contact a Genetic Counselor

Please visit: http://www.nsgc.org/resourcelink.cfm to contact a genetic counselor near you. Please speak with the genetic counselor and your health insurance company about the cost of services.

Contact us at: